First thing this morning I had an appointment with Dr. Carlson, my pain doctor (http://www.thepaincenter.com/ )). I adore my pain doctor, he is kind, considerate, and caring. He was as pleased as I was about the St Jude Neurostimulator ( http://www.poweroveryourpain.com/?gclid=COjU4bLdwbkCFUfZQgod-2EA2Q ). I am excited about the progress after just 1 month. The bladder disease I have, Interstitial Cystitis (IC), has been acting up and causing me to get up every hour at night. Dr. Carlson said I could still get RFA's for this, so that was good news. They hurt like all hell broke loose, but help for 4-5 months.
I had told Steve (St Jude rep) the wrong time, so he hurried on over to Dr. Carlson's office to reprogram my Neurostimulator. I was going to write down all the different programs, but thankfully Steve had a printer on his re-programmer. There are 6 different programs, including 1 that covers only my right side. Additionally, 2 of the programs I can adjust left and right! Two of the programs allow me to adjust left and right! Now that is progress. I am excited about trying out the various programs, and hopefully starting to feel stronger for longer each day.
After, the appointment with Dr. Carlson, I had my yearly checkup appointment at my Urologist (www.peedoc.com ), for the Interstitial Cystitis. I have been with Dr. Nelson for over 13 years, and he has been incredibly supportive. I have samples of a new medication for the IC, and a prescription to try of a bit higher dose, after I use up the samples. The only good part of having a disease that starts getting recognition is that it gets research dollars also. I also have been wanting to let Dr. Nelson know that his support throughout the disability process and illness has been a gift, and he told me something very insightful off the subject of medicine. We were talking about families and stress (hand in hand :) ) and he said he believes every child is born with a personality, and no matter how well they are raised, their personality will eventually come through. A helpful comment at this time.
What was I thinking making 2 appointments on 1 morning.
Tired!
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